Abstract Presentations

Developmental Pediatrics

• Bone Mineral Density in Children with Congenital Spinal Dysfunction
• Disease Management and 10 Simple Rules for the 21st Century Health Care System
• Factors Associated with Mental Health Adaptation in a Multi-site Study of Adolescents & Young Adults (AYAS) with SB
• A Group Visit Model Program for Children with Spina Bifida
• Growing up Ready: A Framework for Preparing Youth with Disabilities to Transition to Adulthood
• The Impact of Weight Concerns by a Member of the Care Team in Patients with Spina Bifida (SB)
• Implication of Bivalent Chromatin and Microrna as Potential Folic Acid Responsive Targets (FART) in Folate Mediated Rescue of Neural Tube Defects in Mouse Model of Spina Bifida
• The Journey towards an Independent Life
• An Overview of a Project to Assess the Effectiveness of Bowel and Bladder Management Techniques for Children with Spina Bifida
• Parent's Report of Adolescent/Young Adult (AYA) Demographic and Clinical Status in a Large Multi-site Descriptive Study
• Participation among Youth with Spina Bifida
• Prevalence of Hypertension in Children with Spina Bifida
• Quality of Life of Young Children with Spina Bifida: Differences based on Bowel and Bladder Continence Status
• Surgical Versus Medical Management of Bowel Continence for Children with Spina Bifida
• Survival of Infants with Spina Bifida in Ten Regions of the United States
• Upper Extremity Overuse Injuries in those with Spina Bifida: Results of a Chart Review and Case Studies

Epidemiology Genetics

• Association of Folate Metabolic Pathway Genes with Human Spina Bifida Meningomyelocele
• Awareness of Spina Bifida and Periconceptional use of Folic Acid among Pregnant Women in a Developing Economy
• A Cost-Effectiveness Analysis of Prenatal Screening Strategies for Neural Tube Defects in an Islamic Country, Iran
• Development and Evaluation of a Folic Acid Education Program for the Worksite
• Folic Acid Awareness and Reason for not Having a Daily Intake in Women and Men of Childbearing Age
• A Global Perspective on Impact of Flour Fortification with Folic Acid on SBA Prevalence Rates
• Identified Gaps in the Literature: the Assocation between the Hyperhomocystinemia (MTHFR) Mutation and Anencephaly
• Intellectual Performance in Myelomeningocele: Impact of Brazilian Medical and Social-Demographic Factors
• Latex Allergy Precautions in Children with Spina Bifida Receiving Childhood Immunizations Education: a Community Healthcare Providers Survey
• Mortality Associated with Spina Bifida in the United States, 1979-2005
• Obesity and spina Bifida: Another Major Challenge?
• Parenting Styles, Activity Levels and Food Choices, a Study of Children with Spina Bifida in the Maritimes
• Population Estimate of People Living with Spina Bifida in the United States, 2004
• Spina Bifida Healthcare Utilization and Expenditures
• Spina Bifida Prevalence among Children in Ten Regions of the United States
• Treatment and Follow up of Children with Neural Tube Defects in Northern Tanzania

Neuropsychology

• Chiari Malformation and the Impact of Hydrocephalus on Cognition
• Clinic-Based Serial Monitoring of Neuropsychological Functioning in Youth with Spina Bifida
• Cortical Oscillatory Patterns and Dysgenesis of the Corpus Callosum in Children with Spina Bifida and Hydrocephalus
• Cortical Responses During Touch Perception in Children with Spina Bifida and Hydrocephalus
• Development in Children with Spina Bifida: the Impact of Parenting and Motor Skills
• Early Information Processing: the Development of Attention among Infants with Spina Bifida
• Increased Cortical Complexity in Cortically-thin Regions: an Amri Study in Spina Bifida
• Language Profiles in Children with Spina Bifida:  an MEG study
• Math Components in Spina Bifida Myelomeningocele
• Psychological Health in Transition-age Individuals with  Spina Bifida
• Reaction Time in Younger and Older Adults with Spina Bifida

Neurosurgery

• Activity Of An Antimicrobial Csf Shunt Catheter Against Three Major Shunt Pathogens
• Adult Tethered Cord: A Retrospective Study Of Clinical Presentation And Indication For Surgery
• Approach To Tether Cord Syndrome In Adults
• Chiari Malformation Clinical Quandaries: When To Operate
• Correlation Of Surgical History And Quality Of Life Outcomes For Children With Open Spina Bifida
• Comparison Of Neurocognitive Outcomes And Ventricle Size In Myelomeningocele Infants Treated For Hydrocephalus By Shunting To Those Treated With Combined Endoscopic Third Ventriculostomy / Choroid Plexuis Cauterization
• Does The “benign” Sacral Dimple Exist?
• Management Of Complex Shunted Hydrocephalus In Spina Bifida Patients
• The National Survey Of In Utero Diagnosis For Central Nervous Anomaly In Japan
• Psychosocial and Family Functioning in Adolescents with Spina Bifida
• Neural Tube Defects; Surgical Approach In Slovakia
• Single Stage Treatment Of Spina Bifida With Hydrocephalus Based On A Prediction Rule Derived From Preoperative Cranial Ultrasound
• A Survey Of People With Ventriculo-atrial Or Ventriculo –peritoneal Shunts In The Community In The United Kingdom
• Tethering Of The Spinal Cord In Spina Bifida Children: Surgical Results With Over 60 Patients
• Ventriculoperitoneal Shunt Failure Following Extradural Spinal Surgery In The Pediatric Spina Bifida Population: An Institutional Review

Nursing & Allied Health

• ACE Procedures on Toileting Independence in the Pediatric Spina Bifida Population
• Current Prevalence of Latex Sensitization in Children with Spina Bifida with Use of Latex Precautions
• The Development of Lower Extremity Skin Evaluation and Educational Tools based on a Nationwide Survey of Spina Bifida Clinics
• A Developmental Approach to Managing Bladder Incontinence
• The Experience of Self-Management in Transition-Age Women Living with Spina Bifida
• A Family Intervention to Enhance Involvement in Condition Management of Youth with Spina Bifida: a Pilot Study
• Family Mananagement of a Chronic Condition: Perspectives of Adolescents with Spina Bifida
• The Impact of Spina Bifida and other Chronic Health Conditions (CHC) on Families
• Mentoring Projects for Teens with Spina Bifida Result in Improved Socialization Skills, Independence and Community Participation
• Pressure Ulcer Risk Factors in Children and Adolescents with Spina Bifida and Spinal Cord Injuries
• The Process of Transition of Care of Neurogenic Bowel Management in the Preadolescent with Spina Bifida: the Primary Caregiver's Perspective
• Sexuality for Young Adults with Spina Bifida
• Testing the Transition Training Preparation Program
• Toward Authentic Care and Transparency of the Other
• A Unique Outreach Effort to Unite Teens with Spina Bifida, who are Geographically Distant from the Metro Area, with Mentors was Successful and can be Readily Applied to all States
• Use of Cone Irrigation Enema for Bowel Continence in Spina Bifida
• The Use of an Instructional Skin Care DVD for those with Spina Bifida or SCI: Is there an Effect on Knowledge and Behavior?

Orthopedics

• Activity Level, Impairment And Quality Of Life Among Children With Spina Bifida
• Advances In The Management Of Scoliosis In Spina Bifida
• Advances in the Management of Spinal Deformities - Kyphosis
• Enhanced Sensory Information Augments Step Output:  Treadmill Stepping In Infants With Spina Bifida
• The Evolution Of Orthopedic Surgery In Spina Bifida
• Hip Dysplasia In Children With Myelomeningocele: Efficacy Of Treatment
• Motion Analysis for Patient Evaluation and Decision-Making in Myelomeningocele
• The Natural History Of Kyphosis In Myelodysplasia
• Orthotic Management of the Spina Bifida Population
• Performance Of Activities In Daily Living In Children Born With Spina Bifida , Measured With Assessment  Of Motor And Process Skills
• Tibial Rotational Osteotomies In Patients With Myelodysplasia: Outcomes And Risk Factors
• Upper Extremity Overuse Injuries In Those With Spina Bifida: Results Of A Chart Review And Case Studies
• Use Of Vertical Expandable Prosthetic Rib For Management Of Spinal Deformity In Non- Ambulatory Spina Bifida Patient
• Ventriculoperitoneal Shunt Failure Following Extradural Spinal Surgery In The Pediatric Spina Bifida Population: An Institutional Review

Transition

• Assessment Of Spina Bifida Care For Adolescents And Youth: A Quality Improvement Tool For Spina Bifida Centers
• Barriers To Community Participation
• Creating Tele Learning Communities And Social Networks For Teens And Young Adults With Spina Bifida
• Documentation Of Transition Plans For Primary Children's Medical Center, Spina Bifida Program: Cdc/battelle Spina Bifida Transition Project
• Educational And Vocational Outcomes For Individuals With Spina Bifida
• Establishing Quality Healthcare For Adults With Spina Bifida Requires Collaboration, Cooperation And Compromise
• The Experience Of Transition To Adult Health Care For Adolescents And Young Adults (ayas) With Spina Bifida (sb)
• A Lifespan Model For Managing Childhood-onset Disability – The Spina Bifida Expansion
• Physical Activity And Fitness, And Related Factors In Adolescents And Young Adults With Myelomeningocele
• Preparation For Adult Participation
• Psychometric Evaluation Of The Adolescent Self Management Scale (amis Ii)
• Relations Among Cognitive, Academic, Executive Function, And Independent Living Skills In Young Adults With Spina Bifida Preparing To Live Independently
• Self-management, Psychosocial Functioning, And Health Outcomes In Transition-age Individuals With Spina Bifida
• Spina Bifida And Mobility In The Transition Years
• Spinability Camp 2008
• Timeline For Transfer Of Responsibility Of Medical Tasks During Adolescence: A Longitudinal Investigation
• Tools We Use
• Transition Down Under
• Transition Goals, Self-management Competencies, And Needs In Adolescents And Young Adults With Spina Bifida Participating In A Transition Program
• The Transfer Of Medical Care Responsibility From Parent To Child During The Transition To Adulthood
• Transition Model At Children’s Memorial Hospital
• Transition Services For Adolescents With Spina Bifida In Alabama: Challenges, Lessons And Successes
• Youth With Spina Bifida And Transitions: Using The Who Icf Model In A Nationally Representative Sample
• www.healthytransitionsny.org:  Curriculum And Interactive Tools To Facilitate Health Care Transition Of Youth With Developmental Disabilities

Urology

• Abnormalities of the Upper Urinary Tract in a Myelodysplastic Population
• Age at Time of Antegrade Continent Enema Procedure; is it a Predictor of Success?
• Assessment of Detrusor Leak Point Pressure in Patients with Spina Bifida using the Reinsertion Modification: a Technique Worthy of Inclusion in Standard Urodynamic Evaluations
• AugMentation Cystoplasty and bowel function: symbiotic surgery
• Bladder Augmentation Present In Only A Minority Of Adults With Spina Bifida And Bladder Cancer
• Bladder Regeneration In A Canine Model Using Hyaluronic Acid/poly(lactic-co-glycolic) Acid Nanoparticle-treated Porcine Small Intestinal Submucosa
• Body Mass Index As A Predictive Value For Complications Associated With Reconstructive Surgery In The Myelodysplasia Patient
• The Bone Anchored Perineal Sling In The Treatment Of Neurogenic Incontinence In Pre-pubertal And Adolescent Boys
• Bone Marrow Derived Stem And Progenitor Cells For Bladder Tissue Engineering
• Cecal And Sigmoid Mace: Which Is Better?
• Comparison Of Left- And Right-sided Antegrade Continence Enema (ACE) For The Management Of Severe Constipation In The Pediatric Neurogenic Bowel Population
• Compliance Changes After Bladder Neck Sling Without Augmentation In Children With Neurogenic Incontinence
• Comprehensive Urological Discharge Program
• Continence In Patients Undergoing Fetal Repair Of Their Myelomeningocele
• Cryptorchidism In Spina Bifida: Supproting The Role Of The Genitofemoral Nerve
• Current Management Of Children With Myelomeningocele
• Cystatin C: A Potentially Useful Serum Markder For Monitoring Renal Function In Individuals With Spina Bifida
• Endoscopic Treatment Of Catheterizable Stomal Incontinence With Injection Of A Bulking Agent
• Evaluation Of Bowel And Bladder Programs And Continence Outcomes
• Expression Of Uroplakin And Zona Occludens-1 In Regenerated Rat Urothelium
• The Histopathologic, Pharmacologic And Urodynamic Results Of Mesenchimal Stem Cell Injection To The Decompansated Rabbit Bladder
• Initial Trlal Of Alfuzosin To Treat Neurogenic Bladder Dysfunction
• Laparoscopic And Minimally Invasive Approaches To The Mace Procedure
• Long-term Durability, Tissue Regeneration And Neo-organ Growth During Skeletal Maturation With An Autologous Neo-bladder Augmentation Construct
• Long Term Outcome Of Neuropathic Bladder: Perspectives From A New Clinic
• Novel Murine Model For Ileocystoplasty: H&e And Ki-67 Staining Do Not Demonstrate Carcinogenic Changes
• One Year Clinical Outcomes With Lumbar To Sacral Nerve Rerouting In Spina Bifida
• Percutaneous Nephrolithotomy In The Pedatric Population With Spinal Cord Lesions
• Percutaneous Nephrolithotomy For Renal Calculus Disease In Patients With Spina Bifida
• A Qualitative Study Of Practitioner, Caregiver, And Child Perceptions Of Incontinence
• Recalcitrant Urinary Tract Infections In Augmented Bladders
• Regarding The Goal Of Early Urodynamic Evaluation Of Children With Spina Bifida: Have Referral Patterns Changed Over The Past 15 Years?
• Risk Evaluation Of Renal Function Impairment In A Retrospective Study On 502 Spinal Dysraphisms
• Robotic Assisted Laparoscopic Augmentation Enterocystoplasty
• Tap Water Irrigation And The Use Of Additives To Optimize Success With The Malone Antegrade Enema (mace)- The Indiana University Experience
• Tissue Engineering Techniques For Bladder Regeneration
• Urethral Lengthening: Long-term Durability Of Continence And Ease Of Catheterization
• Urologic Management Of Neonatal Spina Bifida
• Urologic Outcomes And Quality Of Life In Children And Adolescents With Neurogenic Bladder: A Pilot Study
• Use Of The “l-stent” For The Management Of Stomal Stenosis In Catheterizable Channels
• Use Of Rectus Muscle Flap During Bladder Neck Closure
• Utilization Of Bladder Augmentation In Patients With Spina Bifida In The United States
• Variations In Leukocytic Immune Response Between Distal And Proximal Small Intestine Submucosa (sis) Rat Bladder Augmentation Models
• Various Antegrade Continent Enema Solutions Diminish Toilet Time